Category: Project

Hello! My name is Ida, and I’m here to share my incredible journey through the EUPATI Open Classroom, an initiative by the European Patients’ Academy of Therapeutic Innovation (EUPATI). For me, EUPATI training was a ride filled with challenges, dedication, and a newfound understanding of the medical world.   Let me be honest; diving into […]

Sandra Schaftner volunteers for the German Lupus Group, Lupus Erythematodes Selbsthilfegemeinschaft e.V. She is also one of the German-version translation volunteers of Lupus100. Below is a piece Sandra wrote on smoking and lupus. According to a study presented at the EULAR Congress 2023, smokers have a doubled risk of developing lupus. The study also emphasised […]

Lupus Europe at the Lupus Academy’s 12th Annual Meeting: Highlighting Patient Perspectives   The Lupus Academy is a long-term initiative committed to improving patient outcomes in systemic lupus erythematosus (SLE). The Lupus Academy provides a highly interactive educational forum and brings together experts from around the world to discuss the latest advances in SLE.   […]

The First Ever Interim Review Meeting   The 18th of September 2023 marked a significant milestone for Lupus Europe as the Lupus Europe Board and National Members from across Europe gathered virtually for the first-ever Interim Review Meeting. It was wonderful to see so many familiar faces on the screen! Everyone was united by a […]

The Lupus Europe Annual Convention 2023 took place in Lisbon from April 28 to May 1, 2023. The theme of this year’s Annual Convention was “Volunteering”.   Lupus organisations in Europe are patient-led and volunteer based; volunteers are the life force of our organisations. Being a volunteer can be incredibly rewarding, can enhance skills and […]

We are thrilled to share some exciting news from the recent GlobalSkin ELEVATE Conference in Brussels, where Annemarie Sluijmers, Vice Chair and Secretary of Lupus Europe, was honoured with the prestigious GlobalSkin Patient Leaders Award. The conference, held from June 1 to 4, brought together experts, researchers, and patient advocates from the field of dermatology […]

On February 3-5 2023, Lupus Europe organised its 2nd Patient Panel on Youth, bringing together 10 young people from all  over Europe to share their experience of living with lupus. The Panel addressed key issues young participants identified in their life with lupus and explored the possibility of creating a Lupus Europe youth group.   […]

  The European Alliance of Associations for Rheumatology (EULAR) Congress 2023 was incredibly interesting, full of groundbreaking research and information about lupus! EULAR 2023 was also very successful for Lupus Europe and its Patient Advisory Network (PAN) members. With unwavering dedication and hard work, PAN members showed their commitment to supporting the lupus community across […]

Discover the future of healthcare at the upcoming Lupus Europe Digital Health Webinar! Join us on Thursday, September 28th at 20:00 CET (Brussels time) as we explore the fascinating world of digital health with renowned speaker, Dr. Philipp Bosch. Don’t miss this event! To register, send an e-mail to secretariat@lupus-europe.org