Zoe Karakikla-MitsakouThe European Alliance of Associations for Rheumatology (EULAR) Congress 2023 was incredibly interesting, full of groundbreaking research and information about lupus! EULAR 2023 was also very successful for Lupus Europe and its Patient Advisory Network (PAN) members. With unwavering dedication and hard work, PAN members showed their commitment to supporting the lupus community across […]
Zoe Karakikla-MitsakouLupus Europe Youth Group Meet Up Lupus Europe is organising a Meet Up of the Lupus Europe Youth Group! This event will take place from October 20 to October 22, in Leuven (Belgium). There are a few remaining spots available for new members to join: Do you have lupus? Do you live in geographical Europe? […]
Zoe Karakikla-MitsakouDiscover the future of healthcare at the upcoming Lupus Europe Digital Health Webinar! Join us on Thursday, September 28th at 20:00 CET (Brussels time) as we explore the fascinating world of digital health with renowned speaker, Dr. Philipp Bosch. Don’t miss this event! To register, send an e-mail to secretariat@lupus-europe.org
Zoe Karakikla-MitsakouSandra Schaftner volunteers for the German Lupus Group, Lupus Erythematodes Selbsthilfegemeinschaft e.V.. She is also one of the German-version translation volunteers of Lupus100. Lupus100.org is a MULTILINGUAL website run by Lupus Europe that contains clear answers to 100 questions about lupus. Lupus experts and patients have worked collaboratively on the website. Lupus100.org has also been […]
Zoe Karakikla-MitsakouAt the occasion of World Lupus Day 2023, Lupus Europe is delighted to announce the launch of the multi-lingual website of Lupus100! Lupus100.org is a MULTILINGUAL website run by Lupus Europe that contains clear answers to 100 questions about lupus. Lupus experts and patients have worked collaboratively on the website. Lupus 100.org has also […]
Zoe Karakikla-MitsakouWelcome back to our blog series on National Member News! We are excited about getting our National Member news out to the world, so more people can find out what it is happening in each country and each member organisation! We caught up with Anne-Britt Eide and Cathrine Hjelmeset from the Norwegian Lupus Group, who talked to […]
Zoe Karakikla-MitsakouLupus Europe Youth Group Meet Up Lupus Europe is organising a Meet Up of its Youth Group. There are a few spots available for new members to join: Do you have lupus? Do you live in geographical Europe? Are you between 18-35 years old? Do you want to connect with other young people with lupus? […]
Zoe Karakikla-MitsakouHow does it feel when you have had lupus for more than 20 years ? Lupus Europe is organising its 4th Patient Panel which will focus on the theme of « Senior with lupus ». If you are 60 Years + and have been diagnosed before 2000, send us an email and be selected to […]
Zoe Karakikla-MitsakouWelcome back to our blog series on National Member News! We are excited about getting our National Member news out to the world, so more people can find out what it is happening in each country and each member organisation! We caught up with Rita Mendes from the Portuguese Lupus Association – Associação de Doentes com Lupus […]
Zoe Karakikla-MitsakouVolunteering can be incredibly rewarding, important, and empowering. With that in mind we want to announce the Kick Lupus 2023 Competition, a competition that this year is all about volunteering! To enter the Kick Lupus 2023 Competition, send us your testimonial on “How has volunteering for a lupus organisation helped changed my life?” […]
🇷🇸 The first stop for our new initiative: Lupus Europe on Tour! 😃
🦋 Bringing us even closer to member organisations across Europe!
Last weekend, our Board Member @ricky_chotai visited our Serbian member @StopArtritis in Belgrade.
👏 More visits will follow!
✅ Check our latest publication with @LupusEurope and the team of Francois Chasset: Diagnosis delay and burden in #cutaneous #lupus erythematosus (#CLE) burden: Analysis of two European studies
👉 Link: https://doi.org/10.1111/jdv.70734
👏🏻 Congrats to @LupusAcademy on a 🔝 meeting!
❤️ In this great meeting our Chair @Jeanette_Lupus reminded us that disease control is not the same as life control, & success in lupus care means helping people live well with #lupus.
#LupusAcademy2026
Save the date!
Join Maria Dall’Era, Jeanette Andersen and Ronald van Vollenhoven for two webinars, collaboration with @LupusEurope, on Patient-Physician communication challenges: 15 October & 19 November
#SLE #Lupus #Rheumatology #PRO #PatientEngagement #SharedDecisionMaking
So honoured to have had the opportunity to speak about SLE and AI at @LupusAcademy!
SLE is particularly fertile ground for AI, with enormous potential to support physicians and improve the patient journey.
Solutions such as LupusGPT are moving exactly in this direction:
💜 A proud #LupusGPT moment at @LupusAcademy!
During @vincevenerito ‘s session on Artificial Intelligence and SLE, #LupusGPT was highlighted as an example of “how an information LLM is supposed to be done.”
#LupusAcademy2026
😃 We are at the @LupusAcademy Meeting!
🙌 Proud to be here as part of the faculty and actively contributing as moderators & speakers.
🧬 We’re also learning about new molecules and evolving approaches to lupus management, remission, flare prevention, and AI.
#LupusAcademy2026
🛑 #Lupus symptoms & treatments can impact sexual life.
Although sexual dysfunction is prevalent among RMDs, it remains under-recognised, under-discussed & under-treated in clinical care.
🔊Let's ⬆️awareness about the importance of addressing this issue.
#WorldSexualHealthDay
