Alain CornetMay 10th is World Lupus Day What is lupus? Lupus is a chronic autoimmune disease that causes the immune system to attack the body’s connective tissue and organs. Parts of the body affected can include the joints, kidneys, heart, lungs, brain, blood and skin. Up to 500,000 people in Europe have lupus. 90% of people […]
Alain CornetToday is World Lupus Day, a great time to be thinking about bringing the Lupus World together. ‘Meet the Lupus World’ is our theme for the Lupus Summit in Vienna on 5th September 2015. The summit will take place as an integral part of our annual convention. Make sure your group is represented by getting in touch with […]
Alain CornetIf you are a member of one of LUPUS EUROPE’s member organisations and are interested in getting more involved as a patient advocate – spreading awareness, attending events, working on specific projects… we would love to hear from you. Even if you can only offer a little of your time, your contribution could make a […]
Alain CornetWe’re delighted to share a really great video interview of three patient advocates telling us more about why they get involved. The video was made during the Eyeforpharma event in Barcelona and stars our very own Nuria! To view the video please click here.
Alain CornetDear Lupus Europe members, The theme for this year’s World Lupus Day is “Tame your wolf – Tame your lupus”. We were delighted to be able to ask Leslie Quagraine, a fellow lupus sufferer, if he could produce the artwork for our campaign. Leslie was born in London but is a long-time resident in Finland. […]
✅ Cognitive dysfunction is a MAJOR topic in #LUPUS because of the impact it has on patients. If you have #SLE please HELP US validate the Lupus Brain Fog Severity Scale #LBFSS so that we can help more. Participation to this research takes ~15 mins
LINK: https://lupusresearch.limequery.org/337533?lang=en
🛠️ Maintenance alert:
We are carrying out maintenance work on our main website.
🌐 During this time, you may experience limited access or temporary disruptions.
In the meantime, you can visit #LupusGPT and #Lupus100 for lupus info!
Thank you for your support & understanding!
🧠 Brain fog in lupus is real, but its meaning has never been clearly defined in a lupus-specific way.
🙏 Help us & the research team led by Prof @Lupusreference validate the Lupus Brain Fog Severity Scale (LBFSS).
Your input is essential.
https://lupusresearch.limequery.org/337533?lang=en
‼️If you have #lupus and #BrainFog, it’s important that you take part in this survey‼️
✅ Cognitive dysfunction is a MAJOR topic in #LUPUS because of the impact it has on patients. If you have #SLE please HELP US validate the Lupus Brain Fog Severity Scale #LBFSS so that we can help more. Participation to this research takes ~15 mins
LINK: https://lupusresearch.limequery.org/337533?lang=en
🛠️ Maintenance alert:
We are carrying out maintenance work on our main website.
🌐 During this time, you may experience limited access or temporary disruptions.
In the meantime, you can visit #LupusGPT and #Lupus100 for lupus info!
Thank you for your support & understanding!
🚨Calling all men with lupus in Europe!
Join other men in this 𝗢𝗡𝗟𝗜𝗡𝗘 𝗘𝗩𝗘𝗡𝗧 organised by men with lupus.
📅 10th January (this Sat)
🕙 10am CET
📍Online
E-mail ricky@lupus-europe.org to register
🔝 Hosted by Lupus Europe, facilitated by @ricky_chotai & @apanteli
Lupus nephritis is a type of immune-mediated glomerulonephritis and a serious complication of systemic lupus erythematosus that can affect up to 60% of patients with this condition.
Lupus nephritis
Nature Reviews Disease Primers - Lupus nephritis is an autoimmune-mediated glomerulonephritis and a serious complication ...
www.nature.com
