Zoe Karakikla-MitsakouSandra Schaftner volunteers for the German Lupus Group, Lupus Erythematodes Selbsthilfegemeinschaft e.V.. She is also one of the German-version translation volunteers of Lupus100. Lupus100.org is a MULTILINGUAL website run by Lupus Europe that contains clear answers to 100 questions about lupus. Lupus experts and patients have worked collaboratively on the website. Lupus100.org has also been […]
Alain CornetLUPUS EUROPE is very committed to the success of the European Reference Networks (ERN), in particular ReCONNET where we have a very active role. One of our key contributions is to raise the patient voice. Professor Hachulla is seeking our input on unmet needs in the area of Therapeutic Education. We would like the questionnaire […]
✅ Cognitive dysfunction is a MAJOR topic in #LUPUS because of the impact it has on patients. If you have #SLE please HELP US validate the Lupus Brain Fog Severity Scale #LBFSS so that we can help more. Participation to this research takes ~15 mins
LINK: https://lupusresearch.limequery.org/337533?lang=en
🛠️ Maintenance alert:
We are carrying out maintenance work on our main website.
🌐 During this time, you may experience limited access or temporary disruptions.
In the meantime, you can visit #LupusGPT and #Lupus100 for lupus info!
Thank you for your support & understanding!
🧠 Brain fog in lupus is real, but its meaning has never been clearly defined in a lupus-specific way.
🙏 Help us & the research team led by Prof @Lupusreference validate the Lupus Brain Fog Severity Scale (LBFSS).
Your input is essential.
https://lupusresearch.limequery.org/337533?lang=en
‼️If you have #lupus and #BrainFog, it’s important that you take part in this survey‼️
✅ Cognitive dysfunction is a MAJOR topic in #LUPUS because of the impact it has on patients. If you have #SLE please HELP US validate the Lupus Brain Fog Severity Scale #LBFSS so that we can help more. Participation to this research takes ~15 mins
LINK: https://lupusresearch.limequery.org/337533?lang=en
🛠️ Maintenance alert:
We are carrying out maintenance work on our main website.
🌐 During this time, you may experience limited access or temporary disruptions.
In the meantime, you can visit #LupusGPT and #Lupus100 for lupus info!
Thank you for your support & understanding!
🚨Calling all men with lupus in Europe!
Join other men in this 𝗢𝗡𝗟𝗜𝗡𝗘 𝗘𝗩𝗘𝗡𝗧 organised by men with lupus.
📅 10th January (this Sat)
🕙 10am CET
📍Online
E-mail ricky@lupus-europe.org to register
🔝 Hosted by Lupus Europe, facilitated by @ricky_chotai & @apanteli
Lupus nephritis is a type of immune-mediated glomerulonephritis and a serious complication of systemic lupus erythematosus that can affect up to 60% of patients with this condition.
Lupus nephritis
Nature Reviews Disease Primers - Lupus nephritis is an autoimmune-mediated glomerulonephritis and a serious complication ...
www.nature.com
