Author: Alain Cornet

Monday 27th saw the official launch of EPF’s campaign on Access to Healthcare at the European Parliament. LUPUS EUROPE has been involved in the Working group for this project and the working group met on Tuesday to discuss Monday’s meeting and the next steps and the work which remains ahead. There is still a lot […]

  At the beginning of this year, LUPUS EUROPE launched a new initiative, called “LUPUS EUROPE catch-up”. The aim is to better keep in touch with our member groups throughout the year. The first member group we spoke to was Norway. Katharine Wheeler spoke to Kari Ødegård about the challenges and difficulties they face and […]

In the context of EPF’s recent multi-stakeholder conference on Patient Safety, Katharine was asked to tell her story as an example of patient safety in a chronic disease setting. You can read about it on EPF’s blog. Living with Auto-Immune Diseases: A Patient Testimonial

Better late than never… it is time to introduce our newest board member, Sara Badreh. Sara was elected to the board at our convention in Würzburg. We are delighted to have her on board and we’re sure that she will be a huge asset to our team. As you can see from her photo, Sara […]

Let’s Kick Lupus together in 2017 LUPUS EUROPE would like to extend warm wishes to all its members, partners and supporters. We hope that you all have a wonderful festive season and that the New Year is full of promise and fulfillment. 2016 has been a busy year for us, promising exciting times ahead. We […]

The LUPUS EUROPE board met in Milan for a fruitful week-end of meetings from 9-11th of December. Several topics were on the agenda, including the very first preparations for the 2017 convention and mapping out the very busy 2017 calendar of events and work sessions. As well as the board (minus the wonderful Anne who was […]

The Swedish Lupus group have sent us their report of the LUPUS EUROPE convention in Würzburg. It’s in Swedish – of course – but we thought it would be nice to share with you! Have you made a convention report for your group’s newsletter or magazine? If so we’d love to share it here too […]

Today, Tuesday, December 6th Chair Kirsten Lerstrøm, LUPUS EUROPE, was invited to address the European Parliament Interest Group on Rheumatic and Muscoskeletal Diseases (RMDs) on Patients’ Perspectives on Improving Access to Care and Therapies for People with Rare RMDs at the meeting of “Policy Issues and Challenges in the Treatment and Care of Rare Diseases”.

Interview with LUPUS EUROPE chair, Kirsten Lerstrøm, at the American College of Rheumatology annual meeting. https://www.facebook.com/IFAutoimmuneArthritis/videos/713406432141129/