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MEMBERS

The members of LUPUS EUROPE are national and other properly-accredited Lupus Groups in Europe.
At this moment 19 countries with 21 organisations representing about 40,000 patients are registered as Full members, and an extra 5 countries are associate members.
Following international contacts of these organisations are at your disposal for any information you may need about their activities in their respective country:

MEMBER ORGANISATIONS AND INTERNATIONAL CONTACTS
Belgium (Flemish)
CIB-liga vzw
Liga voor Chronische Inflammatoire Bindweefselziekten vzw
Alain J. Baudrez

Tel.: +32 486 48 50 80
Email: international@cibliga.be
Belgium (French)
ASBL Lupus Erythematosus Association
Katherine Wheeler

Tel.: +32 495 124 947
Email: kmew1972@gmail.com
Cyprus
Αντιρευματικός Σύνδεσμος Κύπρου
Lupus Cyprus Cyprus League Against Rheumatism
Foula Markidou

Tel.: +35 722 42 82 85
Email: lupuscyprus@gmail.com
Denmark
Gigtforeningens diagnosenetværk for SLE-LED Lupus
Tove Cassøe

Tel.: +45 22 756277
Email: tove@cassoee.dk
Estonia
Lupus Estonia
Ingrid Poldemaa

Tel.: +372 522 4479
Email: luupuseselts@gmail.com
Finland
Lupus Finland
Kirsi Myllys

Tel.: +35 850 309 8261
Email: yhteys@sle-yhdistys.fi
France (AFL+)
Association Française du Lupus et autres Maladies auto-immunes AFL+
Marianne Rivière

Tel.: +33 87 64 31 87
Email: riviere.marianne@wanadoo.fr
France (LUPUS France)
Lupus France
Catherine Guislain

Tel.: +33 6 9899 5913
Email: cguislain@gmail.com
Germany
Lupus Erythematodes Selbsthilfegemeinschaft e.V.
Simone Pretis

Tel.: +49 931 260 20 89
Email: simone.pretis@lupus-rheumanet.org
Greece
Hellenic League Against Rheumatism
Pappa Athanasia
2 Kipselis Str., 11362, Athens, Greece

Tel.: +30 /6936004726
Email: info@arthritis.org.gr
Hungary
Gabriella Schopper Hungarian Lupus Group
Zoltán Purgel
H-6635 Szegvár, Kórógy u. 69.

Tel.: +36 63 364400
Email: ic@lupusz.hu
Italy
Gruppo Italiano per la lotta contro il lupus eritematoso sistemico
Augusta Canzona

Tel.: +39 339 236 67 746
Email: augusta.canzona@lupus-italy.org
Lithuania
[Lupus.lt]
Justina Pargalkauskaite
Tel: +
Email: Justina.ph@gmail.com
Netherlands
Nationale Vereniging LE Patienten
Wendy Zacouris

Tel.: +31 88 0157 010
Email: info@nvle.org
Norway
Lupusgrupper i NRF
Kari Odegardt

Steinhagen 55A
4100 Jorpeland
Norway

Tel.: +47 233 490 81
Email: lupus@revmatiker.org
Portugal
Associação de Doentes com Lupus
Maria Altiva Paula

Tel.: +35 121 330 36 40
Email: altivap@gmail.com
Slovakia
Klub Motylik
Petra Balazova
Tel: NA
Email: info@klubmotylik.sk
Spain
Federación Española de Lupus
Susana del Pino Pascual

C/ Moreto, 7, 5º dcha, despacho 5
28014 Madrid
Spain

Tel.: +34 918-25 11 98
Email: vocal.internacionales@felupus.org
Sweden
Rheumatikerförbundet, Systemiska Sjukdomar
Sara Badreh
Swedish Rheumatism Association
Hälsingegatan 43 Box 6240
10234 Stockholm
Sweden

Tel: +46 850580500
Email: info@reumatikerforbundet.org
Switzerland
Schweizerische Lupus Erythematodes Vereinigung (SLEV)
Max Hagen
Im Weizenacker 22,
H-8305 Dietlikon
Tel.: +41 44 833 09 97
Email: max.hagen@lupus-suisse.ch
United Kingdom
LUPUS UK
Yvonne Norton MBE

Tel.: +44 1902 49 82 36
Email: yvonne.wmlg@sky.com
Associate Members
Iceland
The Lupus Group of the Icelandic League against Rheumatism
Hrönn Stefánsdóttir

Tel.: +35 562 7349
Email: hronns@gmail.com
Ireland
IRISH LUPUS support group
Caroline Daly

Tel.: +35 31 493 19 88
Email: dalyclan3@eircom.net
Israel
Irgun Ha-lupus Be’lsrael
Israeli Lupus Association (ILA)
Geula Paz & Mazali Irit

Tel.: +97 23 535 03 76
Email: lupus@netvision.net.il
Romania
ASOCIATIA LES ROMANIA
Alecsandra Onac

Tel.: +40 744 304 893
Email: alecsandra.onac@gmail.com
Slovenia
Društvo revmatikov Slovenije
Dominika Naveršnik

Tel.: +38 590 75366
Email: dominika.naversnik@gmail.com